Resumen
What is short bowel syndrome?
Short bowel syndrome is a complex disease that occurs due to the physical loss or the loss of function of a portion of the small and/or large intestine. Consequently, individuals with short bowel syndrome often have a reduced ability to absorb nutrients such as fats, carbohydrates (sugars), vitamins, minerals, trace elements and fluids (malabsorption).
However, in some cases, short bowel syndrome can lead to severe, debilitating and life-threatening complications. Short bowel syndrome is most commonly associated with the surgical removal (resection) of half or more of the small intestine. Such surgery is performed to treat intestinal diseases such as Crohn’s disease, injury or trauma to the small bowel, or congenital birth defects. The presence or absence of the large intestine (colon) also plays an important role in the genesis and/or treatment of the short bowel syndrome.
How common is short bowel syndrome?
Short bowel syndrome is rare and affects an estimated 10.000 to 20.000 people in the United States, including both children and adults.
Questions regarding your short bowel syndrome therapy?
You can reach the Accredo Short Bowel Syndrome care team anytime, day or night, seven days a week by phone or online.
Centro de Servicio al Cliente las 24 horas
Call 1-844-492-4942
- 1rarediseases.org
- 2my.clevelandclinic.org my.clevelandclinic.org
Síntomas
What are the symptoms of short bowel syndrome?
Signs and symptoms of short bowel syndrome include:
- Diarrhea
- distensión abdominal
- Excessive gas
- Foul-smelling stool
- fatiga
- Crecimiento deficiente
Loose, watery stool or diarrhea are the most common symptoms of short bowel syndrome in infants and children.
¿Cómo se diagnostica?
A healthcare provider will diagnose short bowel syndrome in your child after a complete medical and family history, an exam and testing to learn more about their symptoms and what’s causing them.
Tests that diagnose short bowel syndrome include:
- Blood tests (complete blood count, blood chemistry, vitamin and mineral levels)
- A fecal fat test
- An X-ray, including barium tests
- A CT (computed tomography) scan
Medicamentos
The following specialty medications are available at Accredo, a specialty pharmacy for short bowel syndrome
Financiación de su atención
Es posible que haya asistencia financiera disponible para ayudarlo con los costos de sus medicamentos, incluidos programas de los fabricantes y programas comunitarios. Los especialistas de Accredo están disponibles para ayudarlo a encontrar un programa que funcione para usted.
- Shire One Path | 877-654-6148
- Patient Access Network Foundation (PANF) | 866-316-7263
- The Assistance Fund (TAT) | 855-940-3153
- NORD | 203-744-0100, option 1
Orientación financiera
Los medicamentos de especialidad que salvan vidas pueden ser costosos. Conozca en este video cómo los equipos Accredo ayudan a las personas a encontrar formas de costear el medicamento que necesitan para sobrevivir.
Encuentre apoyo
There are many organizations that support research and advocacy for Short Bowel Syndrome. Consulte a continuación algunas de estas organizaciones.
Organizaciones de apoyo
Conozca al equipo
Accredo’s Short Bowel Syndrome care team is dedicated to serving you and we understand the complexity of your condition. Nuestros médicos clínicos expertos están disponibles 24 horas al día, los siete días de la semana para responder a cualquier pregunta.
Por qué lo hacemos
Accredo brinda apoyo a pacientes con afecciones crónicas y complejas, y los ayuda a vivir mejor su vida. Mire nuestro video para conocer por qué hacemos lo que hacemos por nuestros pacientes.
Centro de Servicio al Cliente las 24 horas
Call 1-844-492-4942